Muse

This is an iHeart Podcast. Guaranteed human. Living with a rare autoimmune condition brings uncertainty, but it can also create community. In season six of Untold Stories, Life with a Severe Autoimmune Condition, they go beyond MG and CIDP, as host Martine Hackett welcomes stories from other conditions like myositis and IGAN into the conversation. Untold Stories is produced by Ruby Studio in partnership with Argenix. Listen to Untold Stories, Life with a Severe Autoimmune Condition on the iHeartRadio app, Apple Podcasts, or wherever you get your podcasts.

The Old Gays are back with Silver Linings, their lovable podcast from iHeart's Ruby Studio in partnership with Veeve Healthcare. Robert, Mick, Bill, and Jesse strut back down memory lane for season two, sharing lessons on life, love, and loss. These are the kind of insights that only come from experience. So tune in to Silver Linings with the Old Gays on the iHeartRadio app, Apple Podcasts, or wherever you get your podcasts.

Hey, everybody, we are getting ready to go on a trip. We're not packed yet, but our brains definitely are because we have a trip to Baja Mar on the horizon and it's kind of all I can think about. I'm so excited about the food. There are amazing restaurants and lounges there that I'm gonna sample everything I possibly can. I'm gonna gaze into the water and mostly I am gonna watch the Daily Flamingo Parade, which might be the thing I'm most excited about. There's also an incredible spa and I know Tracy's gonna be taking advantage of that. There is excited and then there is Bahamar excited. Start planning at bahamar.com. Alienware's back to school event is the perfect time to score top gaming gear with incredible features and advanced engineering to go beyond performance. Start your Alienware journey with the Alienware 15 gaming laptop featuring Intel Core processors. Game, live stream and multitask for hours on end. Pair your incredibly smooth gaming experience with immersive visuals and sound by saving on sleek Alienware monitors, headsets, and more. This limited-time sale awaits you now at Alienware.com slash deals. Welcome to Stuff You Missed in History Class, a production of iHeartRadio.

hello and happy friday i'm tracy v wilson and i'm holly fry this week we spent the whole week talking about dorothy crowfoot hodgkin something that became clear to me very early in the research was going to be two parts both because i wanted to spend a little more time talking about her her peace activism, her work basically saying we should cooperate internationally as scientists, all of that, which is mentioned in most writing about her, but maybe not a lot of time spent on it. And also, I just loved her. She's great. I kept finding more reasons to love her the longer I worked on the episode. And when I was in England, I sent myself a number of emails that just said as the subject line, some person's name or some event or whatever that I had just found reference to. Yeah, I do the same when I travel. Yeah, eventually, for some reason, I got tired of doing that. And I started just taking pictures of signs. And then after I got back to my desk, I was just flipping through my camera roll and seeing all the pictures of signs I had taken and, you know, displays in museums and things like that. And that was when I realized, number two, number one, a bunch of stuff was tagged as happening on Dorothy Hodgkin Road. And then number two, that I had multiple things related to Dorothy Hodgkin that I had taken pictures of while I was doing that. I had also taken pictures of, first, the exterior of the Alexander Fleming Laboratory Museum. Which is at the hospital where he was working in London. Holly, have you been there?

I have been by there. I have not been in there. Okay. But I know where you're talking about exactly.

So this trip to England, we arrived in London. Patrick and I spent a few days in London. We met up with some friends in Birmingham where Patrick was at a convention. And then my friend and I came back to London together and then Patrick and her husband came back separately together. And my friend and I decided to go have dinner at a barge in Little Venice, which was a wine and cheese barge. Which we were planning to have wine and cheese and then do a second round of food somewhere else, but we filled up on wine and cheese. And so as we were walking out there, we saw the exterior of the building. There's like a marker. It's clear this is the building where Alexander Fleming discovered penicillin. We came back by a different route. that took us on the other side of the building and realized that there was a museum there that I didn't know existed that was the Alexander Fleming Laboratory Museum. And this was maybe a two-minute walk from the hotel where Patrick and I were staying. And so the next morning, it was one of those days where you're just, all you're doing is flying back home. But the flight home doesn't leave until the afternoon. So you have a little bit of time in the morning that's time to do something but not time to do much. And I said, why don't we walk over to the Alexander Fleming Laboratory Museum because it's two minutes away. It opens at 10. We need to be checked out of the room by 11. It was the perfect amount of time to go. It is a very small museum. It is his laboratory that has been reconstructed to look like it looked when he was working there and then a room where a brief film is shown and then a display about, like, the development of penicillin and the history of penicillin. And it turned out to just be the really perfect way to close out the trip, have a brief thing to do before heading off to the airport, and then another thing that brought up the name of Dorothy Crowfoot Hodgkin in all of this. One of the things, there were several things that jumped out to me. One is that we, something that we referred to when we were talking, which is her doing chemistry experiments in the house. Unsupervised, as far as I know. I think it was in the biography of her that I referenced, which, as I've started doing lately, that was the thing that I read last, after the outline was largely put together that kind of filled in some little gaps in what I knew about her biography. So that is by Georgina Ferry, and it is called Dorothy Hodgkin, A Life. It was first published in 1998. A second edition came out in 2014. There might be another edition more recently than that. But one of the things she said was, quote, modern parents might question the wisdom of letting children play with naked flames in the attic of an old house.

And I was like, yeah, I couldn't even play with naked flames at the dining room table, not in the attic.

Well, I mean, you were a very highly supervised child.

I was. Yeah, this is correct. Yeah.

Like, my parents were a little more tired by the time they got to me, because we had, I had three older siblings.

Yeah. I was the oldest, and my mom was an anxious person.

Yeah. My mom was, too, but there was a lot of finger crossing, and we're tired.

Yeah.

So I played with open flames a lot as a kid. Yeah.

I don't remember how old I was when I got a chemistry set, which was one of, you know, the commercially made chemistry sets for children. But I begged for it for Christmas or birthday, one or the other, and got it. And most of the experiments that I wound up doing out of it were the experiments that I could do unsupervised. that did not involve open flame, did not involve anything that was marked as being hazardous.

Oh, I had my own lighter by the age of nine. That's funny. Part of that, to be fair, it wasn't like I was just running around setting things on fire, but I already sewed a lot by that point, and I was taking ballet, and I would singe the ends of my, the ribbons on my shoes. Yeah. So I just, it was just part of my life at that point.

They got to not fray. I also really thought a lot while working on this episode about the nature of science as an international cooperative endeavor and how devastating it is that how much of how much science funding has been gutted in the United States. because that affects not just the United States, but all of these other countries that were interconnected with United States research, some of the other countries that have started increasing their science funding to try to make up for the drop-in funding of the United States, like, it is not, it doesn't compare. The amount of money that was being spent in the U.S., like, just, it was enormous. And interconnected with so many things. Interconnected with the higher education system, A lot of universities have basically been scientific research centers that were being subsidized by the government. And without that money, like, what happens? A lot of the research is not being done. And then it also connects to people being denied entry to the United States or not having their visas renewed or their whole class of visa. Maybe that's going to go away. Like, all of it I found, I just kept thinking about it the whole time I was thinking about all of her trips to make connections with scientists and work with people and encourage them in so many different places, including places that. it was really frowned upon for her to be going yeah like going to North Vietnam yeah yeah I like

you I am very disheartened by the the funding cuts that have been made to a lot of programs and I know there are people for whom that seems logical I don't think their logic is sound And but I I understand how for somebody who is susceptible to this kind of rhetoric, if someone says they're not producing anything, they're wasting this money, that might sound like a good idea. But part of it is that people don't always understand what these labs and these research groups are doing. It's not like they can go, look, we made a this this week. Like some of these studies are years and years long and they don't even know what the outcome will be for quite a ways into it. And it just it breaks my heart that we're not letting those programs continue and to have time. I know some have gotten like, you could continue, but you have to hurry everything up. And it's like, well, that's not how science works. Like now speed science. No, there are processes that are just going to take time anyway. Anyway, it's very disheartening.

Yeah. And the results might be, no, this doesn't work. And we still learned something if that's the case.

Right.

So, yeah. Yeah.

Living with a rare autoimmune condition can bring a lot of uncertainty, but it can also bring people together in powerful ways. Tune in for Season 6 of Untold Stories, Life with a Severe Autoimmune Condition, a Ruby Studio production in partnership with Argenix. This season, host Martine Hackett brings you fresh stories from people living with MG and CIDP and expands the conversation to people living with other rare conditions like myositis and Igam. Through their stories, you'll learn what it's like to participate in clinical trials seeking new treatments, how connection fuels hope, and how people can support one another along the way. Because living with a rare disease isn't about getting through it, It's about moving forward together. Listen to Untold Stories, Life with a Severe Autoimmune Condition on the iHeartRadio app, Apple Podcasts, or wherever you get your podcasts. Alrighty, there is excited and then there is vacation excited. And we are vacation excited right now because we have a trip planned to Baja Mar in Nassau. To be honest, I'm kind of mentally already checked in and I have a beautiful drink in my hand. What I love about this is that you can do it your way. There are three luxury hotels all in one place, the Refined Rosewood, the Playfully Hip SLS, or the Stylish Grand Hyatt. So no matter what your vibe is, if it's relaxed, if it's glam, if it's kind of somewhere in between, you're covered. And then there is everything else. This is like an embarrassment of options. There are more than 45 restaurants, bars, and lounges, incredible chefs, incredible drinks. I'm gonna be all over that. There is a lot of great nightlife that you can get into, like the John Baptiste Jazz Club, which I am also very excited about. If you are a family going to visit, there's a 15-acre water park. And what I am also excited about, shark and sea turtle encounters. Bring them on and don't even get me started about the Daily Flamingo Parade. If you're into sporty stuff, all there. There is a golf course, tennis, pickleball, anything you can think of. Tracy's going to spend a lot of time at the spa, and we are going to spend a lot of time enjoying ourselves. There's Excited, and then there is Baja Mar Vacation Excited. Start planning your perfect getaway at BajaMar.com.

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Snoring, gasping for air during sleep, daytime sleepiness. I'm Shaquille O'Neal, and this shouldn't be anybody's. experience. Ask your doctor about ZepBound Terzepatide, the first and only FDA-approved prescription medicine for moderate to severe obstructive sleep apnea in adults with obesity.

ZepBound is a prescription medicine used with a reduced calorie diet and increased physical activity to help adults with moderate to severe obstructive sleep apnea, OSA, and obesity to improve their OSA. ZepBound is approved as a 2.5, 5, 7.5, 10, 12.5, or 15 milligram injection. ZepBound contains trisepatide and should not be used with other trisepatide-containing products or any GLP-1 receptor agonist medicines. It is not known if ZepBound is safe and effective for use in children. Don't share needles or pens or reuse needles. Don't take if allergic to it, or if you or someone in your family had medullary thyroid cancer, or if you've had multiple endocrine neoplasia syndrome type 2. Tell your doctor if you get a lump or swelling in your neck. Stop ZepBound and call your doctor if you have severe stomach pain or a serious allergic reaction. Severe side effects may include inflamed pancreas or gallbladder problems. Tell your doctor if you experience vision changes before scheduled procedures with anesthesia. If you're nursing, pregnant, plan-to-be, or taking birth control pills, taking ZepBound with a sulfonylurea or insulin may cause low blood sugar. Side effects include nausea, diarrhea, and vomiting, which can cause dehydration and worsen kidney problems.

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something else that i said to you sort of in a moment between actual recording was about dorothy and thomas's relationship yeah i i feel like it's an overstatement to describe them as polyamorous because that is not an idea that really like that term had not been coined right i don't think for all of their lives definitely not for most of their lives And I'm also not fully, fully sure what her feelings were about his other relationships. I know that conceptually, she was like, we should be free to love who we want to love. But there's a difference between thinking that conceptually and what your feelings are about it.

Yeah.

And I'm not fully confident I know what her feelings were about it, but it does seem like she knew he was having these other relationships, that neither of them felt like it was a betrayal in any way. And then it just seems to have worked for them, that they were so rarely in the same place for long periods of time, but continually writing each other letters.

Yeah, I mean, their whole marriage is unconventional, even if they did not have whatever agreement or understanding in place that, like, there could be other romantic partners in the mix. Just the fact that they barely lived in the same place ever is...

Well, that was, like, also the plan for minute one. It was like, we're going to get married, we're going to go on a honeymoon, but we're immediately going to live in two different places.

Yeah.

When I was in college, I might have told this story before. When I was in college, I dated a guy for a chunk of my time in college. And his parents were both tenured professors at different universities in different states. And that was just because, like, that was how their careers had evolved. They had both wound up on a tenure track in different places, and so they saw each other on weekends, holidays, summers, and they did a lot of driving back and forth between Western North Carolina and North Georgia. And my perception was that that worked for them, and it, you know, they had basically two households in two different places that their children went back and forth depending on what was going on, and it seemed to work out.

Yeah, I used to work with a guy who lived, it was in my brief foray into the gaming industry when I was running at Cartoon Network. And he, I realized after that, I didn't want to stay in gaming because so many people like the game publishes. And then, you know, not that long later, either that whole team gets sunset or sometimes the company closes or whatever. Like, it's a very, for a lot of people, not everybody, but for a lot of people, it is a very kind of migrant career to have where you're constantly on the moon. Kind of volatile. And their thing was like, well, we need somebody to have a base of operations. Like, we need, you know, one stable place while recognizing that this other person is going to live in other places a lot of the time. And for them, they were very devoted. Like, he was very devoted to his family and they made it all work. But I would be miserable.

Yeah. Yeah.

Yeah, I don't want to live away from Brian.

No. He's my BFF. It's funny to me because, like, it's obvious to me that this kind of relationship is not a relationship.

that would work for you and Brian in any way. Yeah. But the fact that they got married so quickly after meeting one another.

Yeah, yeah, yeah, yeah. That's a little parallel.

That did kind of remind me of you and Brian.

Well, their marriage date is very close to ours as well, which made me giggle a little. I'm like, oh, another person that married right away after they met in December.

Yeah. I do feel like all of the distance and separation was hard for their kids.

Oh, it had to have been.

At least some of the time. And I don't know how her other siblings felt about what their somewhat similar upbringing was like. Like Dorothy talked about, it making her a more independent person and that really becoming a part of her later life. But I don't really fully have a sense of how the younger sisters felt about how often their parents were separated, how often they were separated from their parents.

Yeah. I mean, it's, this is another interesting parallel, right? Like, and there's not necessarily one answer because there are like my dad's career military. So there were times he was gone for sometimes years at a time. And I credit that with one of the reasons I'm very independent, but it's also like, because that was a time where my mom was not always coping with things very well. And so I just kind of had to be so it's like on the one hand great it made me super independent on the other not great for the family overall you know what I mean you can have both simultaneously so it's tricky if they didn't write it down anywhere yeah we may never know yeah yeah I did have to giggle at one point when she was told to rest for a month yeah what no your hands no right

Right. My impression was that she got no diagnosis at that doctor visit when she was told to rest for a month. And then she got home and found that John Bernal had made a breakthrough while she was at the doctor. So I think she had no diagnosis and these orders to rest and was like, well, I'm immediately diving into this huge project that we've made a big breakthrough on.

I mean, I just can't imagine any scenario where I just rest for a month. Yeah. I'd lose my mind. Like, sure, take time off of work for a month. That sounds fun. Like, I would love a no-obligation life for four weeks, but I would still be Putters McGee. I'd be in the sewing room making stuff. I'd be, you know, scooting along doing, I don't know, trips. Yeah. Things. I just can't, like, it sounds like that rest for a month was, especially because she was going for a complaint with pain in her hands.

Pain in her hands, yeah.

Would be a lot of do nothing for a month. And I think, again, this is before the wealth of entertainment options one has these days. Oh, sure. Like, at that point, would he just sit quietly in a room? I don't...

Yeah. That's torture. And I have absolutely no concept whatsoever of whether rest would be helpful or harmful for somebody with rheumatoid arthritis, which they did not know yet, from my understanding, was what she had, right? Yeah. Because there are conditions where doing exercise is helpful, but there are also conditions where exercise can cause a flare-up or can exacerbate situations unless it's done really carefully. And I did not look into which of those or what combination is the case with rheumatoid arthritis. But yeah, just being like, oh, no, rest for a month.

We have some in my family, and it's not the same for everybody. Okay. So you know what I mean? Some people do better if they're keeping up light amount of work and others just have inflammation that makes movement very, very painful. Yeah. And it gets exacerbated when they try to do more like exercisey things. Yeah. So I think it just depends. I mean, I could be wrong. And I also am going off of some of that being quite old information, you know, a couple of decades old. So I'm sure modern stuff, there's a lot more therapies, medications, et cetera. But I don't think it's the same for every person. So complicated in a variety of ways.

I think the closest thing I've ever experienced to that are, number one, when I was in high school, I got mono.

Yeah.

And I had about two weeks when I really could do almost nothing physically. And then the first time I got COVID, the first few days of having COVID, I did not feel as sick as I have felt a couple of different times in my life when I had, like, I felt worse one time when I had the flu and one time when I had a really bad bacterial upper respiratory infection. I felt physically worse. But I was so tired that I couldn't even think about the decision of what can I watch next very often.

So I just started watching things that were really long, like the entire, and also that I had seen before because I couldn't focus on things either. And so I liked, let's watch the entire BBC Pride and Prejudice miniseries because I know how that story goes. And this goes on for a very long time. So I won't even have to get up and like change anything. And that, uh, I continued to have a lot of like really serious fatigue after getting better from like the respiratory symptom part. yeah and then also develops tachycardia it's a party it's a party it's a whole thing anyway so yeah that's the closest thing i can imagine to like rest for a month it's not really the same

thing anyway i gotta be busy b i can't even just watch a thing i gotta be doing so yeah once again

and I love Dorothy Crowfoot Hodgkin. Yeah, she's terrific. Very glad that my trip to England kept just putting her in front of my face. Whatever's happening on your weekend, I hope you're able to take some time for yourself to rest, to rejuvenate yourself a little bit, and that you're able to have patience with yourself and with other people, and that other people are patient with you. I know sometimes I try other people's patience. I think everybody does. Yeah, I hope there's as little of that as possible over your weekend. And if you're at work, I hope work goes very well and that everyone's nice. We will be back with a brand new episode on Monday. And we'll have a Saturday classic tomorrow. Stuff You Missed in History Class is a production of iHeartRadio For more podcasts from iHeartRadio visit the iHeartRadio app, Apple Podcasts or wherever you listen to your favorite shows

Living with a rare autoimmune condition brings uncertainty but it can also create community In season 6 of Untold Stories, Life with a Severe Autoimmune Condition They go beyond MG and CIDP, as host Martine Hackett welcomes stories from other conditions like myositis and IGAN into the conversation. Untold Stories is produced by Ruby Studio in partnership with Argenix. Listen to Untold Stories, Life with a Severe Autoimmune Condition, on the iHeartRadio app, Apple Podcasts, or wherever you get your podcasts. Hey, everybody, we are getting ready to go on a trip. We're not packed yet, but our brains definitely are because we have a trip to Baja Mar on the horizon and it's kind of all I can think about. I'm so excited about the food. There are amazing restaurants and lounges there that I'm going to sample everything I possibly can. I'm going to gaze into the water and mostly I am going to watch the Daily Flamingo Parade, which might be the thing I'm most excited about. There's also an incredible spa and I know Tracy's going to be taking advantage of that. There is excited and then there is Baja Mar excited. Start planning at Baja Mar dot com.

Snoring, gasping for air during sleep, daytime sleepiness. I'm Shaquille O'Neal, and this shouldn't be anybody's experience. Ask your doctor about ZepBound Terzepatide, the first and only FDA-approved prescription medicine for moderate to severe obstructive sleep apnea in adults with obesity.

ZepBound is a prescription medicine used with a reduced-calorie diet and increased physical activity to help adults with moderate to severe obstructive sleep apnea, OSA, and obesity to improve their OSA. Z-Bound is approved as a 2.5, 5, 7.5, 10, 12.5, or 15 milligram injection. Z-Bound contains trisepatide and should not be used with other trisepatide-containing products or any GLP-1 receptor agonist medicines. It is not known if Z-Bound is safe and effective for use in children. Don't share needles or pens or reuse needles. Don't take if allergic to it or if you or someone in your family had medullary thyroid cancer or if you've had multiple endocrine neoplasia syndrome type 2. Tell your doctor if you get a lump or swelling in your neck. Stop ZepBound and call your doctor if you have severe stomach pain or a serious allergic reaction. Severe side effects may include inflamed pancreas or gallbladder problems. Tell your doctor if you experience vision changes before scheduled procedures with anesthesia. If you're nursing, pregnant, plan to be, or taking birth control pills, taking ZepBound with a sulfonylurea or insulin may cause low blood sugar. Side effects include nausea, diarrhea, and vomiting, which can cause dehydration and worsen kidney problems.

Talk to your doctor. Call 1-800-545-5979 or visit zetbound.lily.com.

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Only ten minutes? Can you drive slower?

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